Chronic Pain Update At 28 Years Old

I’m writing a Chronic pain update at 28 years old since I wrote about Chronic pain at 25. Cleaning up the blog, I came across this post and decided to read it. I have noticed it is a well read post even after 3 years so I figured an update was a good idea.

Chronic Pain Update at 28 years old

Picking Up 

Having had the blog 3 years to vent and moan has been extremely therapeutic and uplifting for me. There has been low points but having the blog, twitter and new people to chat to on bad days has really helped. Having something to focus on has also been a huge help, I enjoy blogging so much!

Keeping Track

At 25 I mentioned that I wanted to document my journey with my physical and mental health. I have done just that and I know it’s helped myself and others. That’s something I’m pretty proud of. When you constantly feel pain you often experience something called brain fog. You can easily forget things, for quite some time over the last year I felt like a fraud. I forgot all about my diagnosis’ and began to think it was all in my head.

Reminders

Seeing old posts being read often makes me re-read them myself. About 6 months ago I relearned that I have peripheral neuropathy. I’d been so stressed I forgot, knowing made so much sense all over again. It seems so ridiculous to forget something like that but I was focusing more on my mental health, discovering I have PTSD as well as Anxiety and Depression. Reading these posts have reminded me I am ill and at home for a reason and I’ve been much kinder to myself. 

Chronic Pain Update

So where are we up to now? Not much has changed to be honest, I collect my repeat prescriptions and only see a GP when necessary. I know we’ve exhausted all options right now. Without being asleep 24/7 I am on all the medication possible to help me. I have severely bad days, worse than ever with even more issues but I am learning to cope better. Today is quite a bad day, I’ve felt extremely hot and sick with pain but I’m taking breaks when I need to. It’s important to not to over do things as you always feel so much worse.

Feeling A Lot More Positive

Whilst things have been getting worse I feel a lot more positive these days. 
With a support network online, the Mr happy to do anything I can’t and me being kinder to myself things are more manageable. I’ve learnt to accept this is the way I am, I just need to pace myself and not push myself too much. I’ve learnt to say no when I don’t feel up to something. I guess I’ve grown a lot over 3 years!

Week 3 of my 6 Week Gabapentin Trial

At my last pain management appointment I was asked to start a gabapentin trial over 6 weeks starting with 1 x 300mg a day & increasing by one 300mg tablet every Tuesday starting with 10pm then 10pm & 8am and now I am taking them at 2pm as well.

I know some of you are interested in how it’s going so I thought I’d keep you all updated.

Feeling good

So far I have felt some relief & I am now up to 3 tablets a day (900mg). It’s been a huge relief in the morning taking my 10pm tablet and I can get out of bed a little easier. In fact most morning’s I feel brilliant! Although the first few days I did feel a little spacey!

My mood has definitely improved & I don’t feel quite so depressed & anxious constantly. It’s been quite nice throughout the Gabapentin trial so far.

And a ton of other aches and pains 😂😂

Wearing off

By the evenings though it doesn’t seem to give me much relief compared to the morning. The 2pm tablet I started this Tuesday doesn’t seem to have made much difference but then I have also been quite busy this week & may have overdone it.. A little bit.. Or a lot.. 😂 So I have been very moody & snappy the last 2 days!

Lack of sleep obviously hasn’t helped much either this week and was up at very early hours yesterday! I’m still feeling pretty rough but not quite as miserable and snappy.

I’m looking at doing things like buying a shopping trolley on wheels (in purple of course!). That way I can go shopping alone without struggling so much and hurting myself more.

I guess I am slowly accepting this is only ever going to get worse and I need to start finding ways to do what I want to & have some freedom without trying to struggle with doing things the usual way. 

If your a spoonie what things make your life with chronic pain a little easier?