Steroid Injection Recovery

On 8th march I had my steroid injections as some of you may know and I posted about the procedure and the first 24 hours and thought perhaps it would be helpful for other’s if I share the following few day’s too.

By the second evening I really felt exhausted after doing very little all day and the injection area was extremely sensitive and sore making it a struggle to get comfortable at all but surprisingly I woke up the following morning feeling slightly less discomfort and managed a short trip around town. I did really feel it having walked for a while and a cheeky stop at the pub probably didn’t help as the chair’s weren’t the comfiest and on top of that Izzy decided to jump and pull me to the floor and Eva managed to knock into me so hard I was almost in tears so again on the third evening I was really uncomfortable and tired. (Moral of the story actually rest for the 2-3 days following and avoid children 😉 haha) I did have a slightly earlier night in the hope I would feel better the following day.

Luckily by Friday morning I really did feel so much better and although I wasn’t completely pain-free the majority of the pain was the injection area again. My burning knees and tingly legs seemed to have stopped for a while. Unfortunately I just can’t stop myself trying to do thing’s I feel I’m supposed to do instead of resting otherwise I think I may have recovered a bit quicker but by Saturday morning I sat straight up in bed without even thinking and got up and dressed before I realised I wasn’t struggling to do so!

I can’t even begin to explain how amazing it felt to suddenly realise I was almost completely pain-free! I still felt a few twinges across the day but nowhere near as bad as usual. The Mr suggested taking the girls to the pub for lunch as the weather was warmer and nice enough for them to play in the garden. Normally I dread it knowing after 15 minutes sat in the pub my back, hips and knees will feel like they are on fire and I wont be able to concentrate or enjoy myself but for a change I felt up for it and we spent an hour or 2 there having some lunch chatting with a few people whilst the girls watched a bit of the rugby before coming home for dinner.

Usually I get back and feel exhausted and just want to die on the sofa but instead I came back feeling just slightly achy but over the moon as we had managed a lovely lunch out where I didn’t spend the whole time trying to ignore my pain and getting stressed. We even received a compliment as we were leaving from the staff as we always tidy up after ourselves and the girls behave well too. Apparently they really notice the difference when we visit, we have visited several times over the last week or 2 with friends to try and stop feeling stuck in the flat and I was worried about taking the girls in there and annoying customers & staff so to be given such a compliment really cheered me up on top of the pain relief!

I expected to wake up Sunday morning and regret going out Saturday yet instead I felt amazing and managed to walk to town as well as tidying when I got back. It was so strange being able to do things without thinking again, I’d do something silly then get overly excited because I managed it so easily!

Again Monday morning I woke up feeling great and had the dishwasher loaded and on by the time the Mr & Eva had left for the school run at 8.20am! I put some music on to motivate me even more and managed to scrub half the kitchen before the Mr was back from the school run. I’m so pleased the injections have done something for me. Bolts of pain that were bringing me to tears feel like little tiny shocks now and are so much easier to ignore. My walk doesnt look as awful and im slightly faster than a snail again. Even if it only lasts a few more days I’d happily go through it all again just for the relief I have had already!

Have you had steroid injections? How did they work for you? If at all? How long did the effects last?

 

First steroid injections

I finally had my first steroid injections yesterday at Orsett Hospital after what felt like an extremely long wait. In the end my consultant decided to give me a Lumbar epidural steroid injection, Left L5, S1 Dorsal root ganglia and Right S1, S2,  S3 lateral branch diagnostic blocks.

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I was so nervous but somehow managed to keep fairly calm on the surface. I arrived at 9am where I was shown to a bed and given a gown and the most stunning see through granny knickers going (haha!) to change into. I had my blood pressure taken once the nurse finally found a small enough arm wrap for me  & she checked my temperature before I signed some forms and was given my hospital bands and told someone would come and see me soon. I sat and skimmed the book I took along with me whilst trying to stop myself thinking of anything and working myself up. Then the lady next to me was called in after a while and I was told I would be next and someone would collect me in about 20 minutes.

I felt ridiculously nervous and mentioned on the way to the operating theatre that I had a bit of a needle phobia and was trying my best to ignore it. I had to be propped up with 2 pillows under my stomach as I am slim. They cracked a few jokes about but by then I had already began to panic and was trying to focus on not jumping off the table but my consultant Dr. Thompson noticed my heart rate and asked for me to be sedated and  I felt calm almost instantly and although I kind of felt something was happening it didn’t hurt and I wasn’t really aware of what was happening. I remember rolling onto my bed to be taken to recovery and slowly coming round fully a little while later.

Apart from a few tingles I felt very little to begin with, in fact I was amazed I had no pain! After I had been back on the ward a little while I was given tea and toast before attempting to stand. Surprisingly I felt fine standing and walking just a little stiff so the nurse let me change and called our friend Steve to come and collect me.

I felt a little stiff walking to the car and struggled to get comfy but didn’t feel too bad until I was almost home. Luckily Steve stopped and popped into a shop just in time for me to throw up. We managed to get home before I was sick again and I had a rest on the sofa. I tried to make sure I got up regularly and moved about to ease the stiffness although the pain gradually crept back over the afternoon.

first steroid injections

Over the next few hours my hips, back and legs felt like they were stiffening more and more and bolts of pain were taking my breath away and making me feel nauseous. By the evening I was in so much pain I felt so sick with each bolt of pain and struggled to eat. I spent most of the day on the sofa cuddled up with my pillow and wheat bag feeling exhausted and sorry for myself.

Before bed the Mr ran me a nice warm bath so I could de-tango myself and try to ease the pain a little in the hope I could get some sleep. I dosed myself up and although I did wake several times I had a fairly OK night but woke up very stiff again. Unfortunately I was sick a few more times when I got up due to bolts of pain and felt exhausted still but I tried to move around gently across the morning having a few rest periods on the sofa.

I decided to look Dr Thomson up on-line to see if there had been any feedback from his other patients and was surprised and pleased to find out just how successful he is in his field. When  I came across this page I really was impressed reading about Dr Thomson’s work and the 5th paragraph reminded me how it amazed me when he actually listened to me at my first pain management appointment and I had a feeling he really knew what he was talking about.

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http://www.basildonandthurrock.nhs.uk/media-centre/747-pain-consultant-highlights-international-work

 

Having read this I am so glad I am under such a great team and although I am struggling with the pain I am confident that whether the injections work or not I am under a great consultant who will continue to help me. From the very few people who were able to share their experiences with me it seems I have been very lucky so far and hopefully the pain will ease up soon and the injections work even if its just a few day’s of relief! I will be sent another appointment in the next 13-18 weeks so I guess for now its just a case of resting and seeing how things go. I think I’m going to set up the Catch My Pain app to remind me to track my pain levels again now I have the G4 back so I can monitor everything until my next appointment.

Second Pain Management Appointment

I had my second Pain Managment appointment today and it went pretty well. I filled him in on how my back has been lately explaining how im struggling to manage because the pain seems to be getting worse and I’m struggling to sleep because the left side of my ribcage feels like its being crushed inwards however I lay. He again confirmed I suffer chronic pain which is hard to treat but we can try and find ways to manage it.

I have to request an X-ray on my ribcage from my GP at my next appointment so he can see what is going on with it as you can visibly see the ribs poking out slightly too. I also let him know I have had my duloxetine upped from 20mg to 60mg because I’ve been feeling so depressed.

He examined my back when we had finished covering everything and got me a Tens machine to use and showed me where to place it and how to use it. He told me didn’t want to refer me to physio yet until we see how things go after the steroid injections and using the Tens machine regulalrly.

second pain management

I now have to monitor my weight and weigh myself at the same time every week making sure it doesnt carry on dropping.. Not something I’m looking forward to as I try not to weigh myself too much due to past problems but I am getting so fed up of being in pain that I’m happy to gain some weight. I just really need to try and remember to eat more and make sure theres a few more snacks around as otherwise I forget and usually just eat dinner each day. Luckily the CatchMyPain app lets me add details and notes for each day so I’m going to make sure I keep track of everything on there so I can show the Dr next time as I totally forget half of what I need to say when I go in there!

I wore the Tens whilst shopping after my appointment and it did seem a little easier although my balance is still awful and I feel silly walking. Hopefully the Tens helps me do more as I’m getting so fed up of not doing simple tasks or doing them then regretting it.

I’ll be having my Steroid injections in just a few weeks and then wont see pain management until June 14th. I really hope by then I’ll be able to start physio again.. That is if I dont keep getting caught up in the wires of the tens haha!

Have you used a Tens before? Did it help?

 

Steroid Injection Countdown

After finally getting a pain management referral late last year I met my consultant who was amazing and completely understood everything I said, after being ignored and doubted so much over the year’s this was a huge relief!

Steroid Injection

Steroid Injections

The consultant decided steroid injections may help so I am booked in for 8th March for 3 steroid injections. I’m beginning to feel extremely nervous the closer the appointment gets if I am honest. I’ve decided to call the night before and request to be put to sleep. I had a huge needle phobia growing up but obviously us mum’s get jabbed quite a bit when we have babies so I quickly learnt not to fear the needle so much. However.. the thought of the size of these needles has put the fear back in me!

I am so afraid I will jump when the needles go in and cause problems by doing so. I would much rather be asleep so they can be done carefully and properly without me being a wimp and jumping all over the place. You’d think I’d be able to deal with the pain of a needle considering I am pretty much in pain 24/7. I guess it is a different type of pain which is why I don’t deal with it so well.

The other thing that worries me is that it isn’t just one injection, I’m booked in for three! I will be having a Lumbar epidural steroid injection and bilateral sacroiliac injections. After this my consultant will see how the injections affect me and go from there.

I’d love to hear from other spoonies/chronic pain sufferer’s about their experiences with steroid injections. If you have had these done please get in touch 🙂 If you have a post about them feel free to send me a link too!

CatchMyPain App Review

I came across this amazing app called CatchMyPain thanks to a member from a facebook group I am on. It is available on both the Google Play Store and the Itunes store by searching ‘CatchMyPain’. The app allows anyone with Chronic pain to track and log their pain. It even lets you send it via email making it really easy to share with Dr’s etc!

Catch My Pain

When you use create a pain entry there are 7 pages to complete. On the first page you are presented with a picture of the body and 5 colours to use. Mild pain – Yellow going all the way up to Dark red – Unbearable.

Using these colours you can colour in the area’s which are painful. You can then use colour to specify how intense the pain is in that area. I love this as I find it hard to explain why I am in so much pain. This way I can show people where and how much it hurts so they can get a better idea.

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Pain Intensity options

The body rotates allowing you to colour wherever on the body you need to and theres an eraser if you want to start again.

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On the following page are you are given the option to edit the time frame of your entry. This means you can log exactly when the pain started and for how long it lasted.

I find this handy if you have a particularly bad day and don’t feel up to making an entry until you are feeling better. Allowing you to track your pain accurately as you can enter earlier dates and times too!

Pain Intensity

Next up is the overall ‘Pain Intensity’ which you are given a slider to move. The slider starts from No pain up to Worst pain imaginable.

On the fourth screen, you are given a list of ‘Descriptions’ you can select. These describe the types of pain and you can even add your own. Perfect if you can’t find the right description in the list. You can add as many as you like too which is ideal.

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Condition

‘Condition’ is the 5th screen where you are asked how you felt during the time frame selected on the second screen. You do this by choosing a face to represent ‘Happiness’, from a crying sad face to a smiley face.

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As I have found this app so useful I chose to add on the Stress and Fatigue sliders too for only £0.65! I don’t tend to pay for in-app add ons but this seems a great feature.

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The sixth page is the weather here you can adjust time or date and sync it with your location. You can also enter it manually and it will log the temperature which you can adjust if needed.

Extras

As you can see on the sixth page there is also the option to buy the full weather feature for £1.96. I am currently earning Google Play Store credit using the Google Opinion Rewards app! (Thank me later haha!)

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On the final screen you have the options to add in any comments you wish.

Pain Chart

Having filled out several Pain entries I visited the Pain Chart to see what it showed. I was impressed that it had literally logged everything including the percentage of the body affected by pain!

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I like how it shows Happiness, Stress and Fatigue on here as it also gives people an idea of how the pain affects me. Using this chart I can also work out what actually helps me calm down and relax too. Blogging and Knitting are definitely helping me this week!

Medications

Another part of this app is ‘My Meds’ where it enables you to add any medications you take. You can edit the details of the drug as seen below and you can set the frequency they are taken too.

Again I decided to pay £1.14 so I could add on the Drug intake reminder as I am absolutely awful with remembering to take my tablets at the right time!

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There is also a built-in community, so you can chat with others, when you do this you are asked to set up a username and your display picture becomes the body from your last pain entry showing where and how intense the pain was/is.

Having had a look around the Google Play Store for a similar app several times before I was really happy and impressed when I tried this one out.

What more could you want? It helps you track everything, its an easier way to show friends, family and Dr’s if like me you are very forgetful and forget how to ‘word’ at times and all the data can be saved and emailed to anyone you want! This is a great app for a lot of #spoonies and I just had to share for those that hadn’t come across something like this before.

*This post is in no way affiliated with, sponsored or endorsed by any of the companies mentioned in this post.