Part of the reason i decided to begin blogging again is also part of the reason I stopped blogging before. I am a Chronic pain sufferer and have been for over 5 years now. I struggled to get the help I needed when it first begun which caused me to become extremely depressed and anxious.
I shut off from a lot of my friends and closed my blog and deleted all trace of it as I was fed up of ‘moaning’ about the pain constantly. I’ve recently realised that sometimes to cope with chronic pain you need an outlet where you can vent and moan so you can clear your mind and take control again.
As I’ve come to realise this I’ve decided I’m going to document what goes on with my various appointments, to help me keep track, vent & moan on bad days and make others aware of how chronic pain affects lives, and hopefully find other’s who have learnt coping techniques and to hear their story too. If you’ve got this far then here is my story.
Since my pregnancy with my eldest daughter in 2010 I have had excruciating lower back pain. It all began with struggling to climb the stairs in our first flat whilst pregnant, I’d struggle so much I’d be in tears. I thought at the time it was just typical pregnancy pains until it continued about 6months after my eldest was born.
I eventually got to a point where everyone was telling me I had to go to the DR’s and find out what was going on. Eventually I did and an x-ray showed I had scoliosis of the lumbar spine and low disc space in L4-L5. My GP referred me to physiotherapy which wasn’t helping and due to unfortunate circumstances at the time I became unable to afford the fare to get to my physiotherapy sessions and gave up trying to seek help.
After a few years of struggling with the pain and trying to manage it with over the counter medicines I got much worse especially a few months after the birth of my youngest daughter. Over time it got to the point where I could barely pick her up, so I went to my local GP to try and get some help.
Again I was referred to physiotherapy which didn’t go well at all. After the first session I hurt for almost 2 weeks! By the third session I was barely able to walk for the next 3 weeks. I went back to my GP and explained the pain was worse and explained how it travels down my leg and at times I cant walk or move my legs, attempting to lift my youngest up gives me extremely painful spasms, all of it combined is exhausting and depressing and on top of it all on really bad days I’m extremely nauseous too.
I was prescribed Amitriptyline, Duloxetine, Naproxen and Co-dydramol to try and help manage the pain & the depression. I was surprised to find out that some anti-depressants are also used for nerve related pain but after doing a bit of research discovered they are quite regularly prescribed for this reason. Unfortunately the medication does very little but I am at least able to sleep a bit better on the Amitriptyline which is some relief.
I was sent for more x-rays which showed lordosis of the thoracic spine which shows signs of muscle spasms. This indicates its likely to be a nerve problem which it seems my GP must have worked out as she prescribed the amitriptyline from the start. When I attended my last physiotherapy session the physio decided it was best to release me and refer me to pain management as he said it was clear the exercises had aggravated the situation and he didn’t want to hurt me more and he made me a referral marked as ‘urgent’.
I now have to wait until the 14th December for my pain clinic appointment, which after seeing the waiting times at some hospitals I’m quite lucky I got an appointment this year. I’m hopeful I can find ways to manage the pain and remain as active as possible with their help as being stuck indoors most of the time and unable to enjoy simple things without suffering for it has had a major impact on my mental health and my family.
I’m hoping to connect to other Chronic pain sufferers by sharing my story here and keeping track of my progress. If you read all of this post then, Thank you for taking the time to do so and please feel free to contact me in anyway if you want to share your story or just a chat.